Dittoing Christine ... ask about staying with him. I was with a friend recently who had a week and a half hospital stay due to anemia and something else, they never did find a cause. She was weak and confused, and so a fall risk. She could not be left alone, but the nurses were too busy to be with her all the time, too. (And the bed alarm they had was kind of useless, especially with her confusion at the beginning.) Along with other ladies from church and two of her children, I took shifts sitting with her ... just keeping company, chatting, and making sure she either had a nurse or a good strong hand (and someone to push the IV pole) when she had to get up for anything. I have NO clue what the official visiting hours at that hospital are, but they had no problem with letting all of us take shifts to help out, and with her son staying overnight. (One of the chairs even folds out into a sort of bed for just that reason.) I've done this for other friends at other hospitals, too. One has very clear visitor hours, but exceptions for special health reasons ... they just ask that you check in with Security at a certain time and get an official visitor sticker if you're going to stay late.

Never be afraid to advocate. ((hugs))


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery