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| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Michael welcome to OCF! Im very sorry to read everything your brother has been thru. We will do our best to help you with info and support.
Has your brother gone to another facility for a second opinion? If not, I would recommend trying to get him into a Comprehensive Cancer Center (CCC) asap! CCC's are our country's top cancer treatment facilities. Off the top of my head .... Moffitt, Sloan-Kettering, Johns Hopkins, MD Anderson are some of the best CCCs. A team based approach is used so all specialists are on the same page. CCCs are usually more up to date with things and better equipped to deal with complicated cases and recurrences. Im pretty sure I read a post saying MD Anderson does second opinions by email for patients who are far away.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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