Unfortunately oral cancer (OC) is not one of the more well known cancers. There has not been tons of money poured into research for OC like what breast cancer, skin cancer, lung cancer, etc receive. OCF tries to fund research projects and was a driving force behind much of what is now known about HPV thru Dr Maura Gillison's work. OCF is a very small nonprofit organization that depends on donations to keep running. We do wonders on a shoestring budget and wish we could do more to fund OC research projects but we can only stretch a dollar so far.

I still advise a second opinion for your brother even though he is currently at a great facility. Johns Hopkins isnt far from your area and may be a place your brother could go? Im sorry I cant remember which is a CCC in Philly, HUP or Fox Chase. Both are excellent facilities. I know people who have been treated at both with great outcomes.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile