HI Christine!! how are YOU???
thank you for your thoughtful reply and thoughts..
it sure is discouraging and so hard to watch... I sure have cried a lot these past few days; I honestly would give up my arm to help him heal and stay well.
anyway, I was thinking the same as you -wondering if he is down a bit on his immune health.
when the PEG tube was in .. I was mixing a fine cocktail of immune support, essential oils, fats, probiotics, tumeric and soo on..
but he HATES the texture of powdered mixes so is very hesitant to let me mix up my awesome healthy shakes for him...
so, while he takes vits, and eats as best he can... he is not getting in the same nutrient/immune support he was before.
NEED to change that a bit... realizing this as I write -- he is just going to have to work on developing a taste for them
I did call, left a message. He is in for bloodwork. I did some more research today and actually I think he is showing signs of a similarity to temporal mandibular syndrome. I think someone referenced a name of dental onc specialist in NY.. we have one here, but he gave my husband all the BAD things talk on his first visit back to hi after treatments and he walked out of there so despondent and a bit broken by all the bad news that he said he didn't want to go back. ... seems maybe a gentler approach to the oral health challenges would be valuable for people just two and half months out of treatment. .......sigh. I would love to know if there are any dental/ oral surgeons who specialize in oncology challenges in the New England region ... a reference list or something like that.... who work with trismus, and all the treatment modalities.
alas.. the rain doesn't quit here lately and is not helping the sense of spirit around here.
Thank you Christine for your un-ending support, shot in the arm boosts, compassion and just being here for alllll of us!...
thank you for caring about the test results...
there is HOPE.
take care Christine!