Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Awwww!!! Im soooo very sorry to read about your husbands great progress and the disheartening setback. Unfortunately to the dismay of all patients and caregivers, the recovery phase is full of ups and downs.
I feel so bad when you tell us about how well he was getting along and how you were able to get out and do some fun things together. I hope this low phase is very short and your husband returns to being how he was on your weekend trips quickly.
As far as your husbands recent problems, Im glad you are calling his docs to let them know whats going on. Always notify them of any change just in case they think its something that may be serious where they need to investigate further. At 4 months post rads, he is getting the usual post rads tests most patients go thru. Hopefully the new issues your husband is experiencing is nothing more than scar tissue thats starting to become bothersome. The only other thing I can think of is your husband probably has a compromised immune system. Being out and about he could have picked something minor up that for him is not easy to get over. I cant imagine how upsetting this must be to your husband. Poor guy has been thru enough!
I wish you both all the very best with his upcoming tests. Please let us know how your husbands tests and appointments go. Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |