 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | You're welcome! Thats what we are here for... to help each other get thru some rough times.
From what Ive seen others go thru, the chemo is the culprit behind your husbands arm problems. If he would give the gabapentin (neurontin) another chance it should take care of this. I know the gabapentin did not cause his dry mouth... we ALL suffer from dry mouth after having rads. I know its horrible, I lived thru it too. I wish I could do something to fix this I feel very bad for any patient and caregiver in your situation. He has already been thru enough (u too) that all this must be overwhelming. Plus swallowing probably hurts like heck. I remember I felt like my throat was full of razor blades whenever I tried to swallow after the gunky mucous phase. In time if your husband is meeting his daily goals of at least 2500 calories and 48-64 oz of water he will begin to make progress.
Tomorrows another day, I hope its an easier one than today for you both.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
