I am inclined to think that the sores crop up in different locations as the radiation continues to work. Using the magic mouthwash consistently as Christine suggested is a good strategy, he will have to use it once every three or four hours, not just before he eats.

At this point post radiation, I went for walks with my husband in the local park. We would aim for a park bench and then would sit down and rest. Then we would move on after some rest or go back home. The fatigue at this stage was a shock to my husband. He was a big man and couldn't understand how easily he tired. That, rather than the discomfort, was what bothered him more. If you do for a walk, maybe take a scarf with you. John found the cooler air at this time of the year something that bothered him and he had to have his mouth covered as he was walking.

One thing you might consider trying is manuka honey which is supposed to help with recovery. John didn't use it at this point because he couldn't swallow, but later, when he was receiving esophageal dilatations, he used it quite a bit and it seemed to help him to heal. I know there is some uncertainty about this but if it helps your husband to feel better, it might be worth a try. If you search under "manuka honey" you will be able to read more about the experience of other forum members with it.

At this point, it is the feeling that one is getting stuck when one is expecting improvement after treatment that is so frustrating. I can totally relate to how you are feeling. It takes time and I know it is difficult to stay positive when you are probably stressed out from the weeks of treatment. You have been through a tough time as case manager, caregiver and wife. If you can find someone to stay with your husband for a few hours, you may want to give yourself a little break, like going to Starbucks for a coffee and doing some window shopping. It is important for your own health. I used to get up an hour before my husband so I had that time to eat a leisurely breakfast and have a cup of tea before I was thrown back into the busy day. It was time that was so important to me. Maybe doing something like that will help you too.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.