thank you Christine. your perspective allows insight for me form the inside and gives words and voice to what my husband isn't able to say.
I will talk with him about the pump. he is so averse to the idea of nighttime feeding ...
lots of things we have done this week have helped some but not a ton.
he is now on hydration twice a week not just once so we can focus on nutrition and not just water.
Also he has started taking marinol and antacids daily.
daily bowels is helping too.


right now, though he is still unable to get past intake of about 1500-18oo/cal a day.
it has been a process just to get to this without heaving.

thank you for your support! so so much~!


MrsW
Wife, RN and CG to husband 55 yo diagnosed with tonsillar /lymph nodes SCC HPV+ 11/9/16- PEG and Power Port 12/9/16. Treatment started 12/27 Cisplatin x7 and RAD x35 on 12/28/16. Trismus had gotten worse!