Christine's advice is so thorough, I have only a few points to emphasize. You need nutritionist and nursing team to help you so everything is not solely on your shoulders. My husband tolerated tube feedings, but had other horrible complications following chemo.

IV hydration given in treatment room, as Christine mentioned, can help tremendously. They can add a med cocktail for nausea, anxiety, etc. It saved a hospital visit for us several times.Seemed like a miracle at the time. An added benefit was that I got to rest because the treatment room nurses were fabulous. I could trust them completely! If I took him to ER/hospital, I would have to watch everything they did.

Sometimes nutrionist will try a change in PEG formula to find something better tolerated.

Is it possible that PEG tube placement needs to be checked?
This is so difficult....I hope to hear it has resolved.

Lottie








CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin.
1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED
Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016