I missed all this love! I owe y'all an update. 7 months in and except for 1 trauma incident with a little child running by me and getting caught on the tube and 2 little stoma sores, it's been going fine. I am having a little motivational deficiency with my gym activities but it's going good about once a week. I climbed back to 18 mph a couple weeks ago, even. I have also consulted with a voice specialist ENT and he thinks some filler injections on the left vocal cord would bring it back to center which will stop the constant aspirating and he is pretty confident I will regain all of my voice back. Plus, he thinks with all the weakened and atrophied throat muscles, he can stretch the upper esophageal sphincter and allow me to increase comfort eating. I went through 14 weeks of swalow therapy from an SLP that was part of the boot camp program from MDA.

I took a trip to Colorado and ended up in cardiac ICU with pulmonary edema, sodium depletion and aspiration pneumonia. We were going camping and at 8,000 ft all hell broke loose. My O2 sat tanked and dropped all the wat to 52% but we made it to the ER just as the fever shot up.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023