Ed,
I believe you and my husband started into all of this about the same time.
He is facing the same issue as you....feeding tube only for life.
He is currently on a NG tube and anxious for a PEG tube to be installed this Friday (he had a PEG tube 2 years previous, but it became embedded, aspiration pneumonia (yet again) followed, and thus the NG tube while waiting for stomach to heal for a new PEG tube.
Amazing to me how perspectives can change. Now he is anxious for his PEG tube, since he hates the NG tube.
Anyway, just wanted to let you know that you are not alone.....misery loves company, right?

Anita