I saw ENT yesterday he ordered CTX blood work. He doesn't want me to have extractions as my chin was close to base of tongue and believes it was radiation that caused this. I really like him he is my favorite Dr. He said he'd call RO and explain everything. I explained RO hadn't seen me in a year and didn't know I as on phosforus for 6 month while on clinical trial. He said he'd tell him.

ENT did say if tooth falls out I may need HBOT. He said it's not fun. But might be necessary if bone is exposed.

Then I called my ONC and he said absolutely not while I was still taking treatment.

So I haven't heard back from DDS. I am leaving it to the Dr's to tell him.

So I am trying to do my best with teeth and keeping mouth moist. Taking calcium with D.

Evoxac for saliva.

The top of my front teeth are jagged wife thinks maybe DDS could smooth and coat. She remembers having that done o a tooth she chipped.

Thanks for any suggestions.

"Jo I am sorry you are having so many problems. I am glad you have such a good attitude. I think trying to do the best with what we have is Impt for our well being. Bless you"


T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016