Jo
I am not sure yet I can or will do what has been suggested. I am brushing, flossing and rinsing with baking soda and salt. I also use 50/50 hydrogen peroxide. Painting a fluoride liquid on teeth.
I remembered I was on Phos Nak for low phosphorus in blood for 6 months. I currently take 100 mcr Synthroid, which lists bone mineral loss as side effect.
I had 44 73 gamma ray radiation for 3 months in 2014/15. I am currently still fighting metastic lung cancer with Opdivo.
My quality of life is good. I am thinking a second opinion on removal of teeth. Does anyone have any suggestions? I can travel.Also need to get insurance on board.
The HBOT is bothersome to me due to possible side effects (eye problems) I have very good eyesight and I am an artist, my eyes are very important to me.
It's been suggested I have HBOT, but it is my understanding (from research) shouldn't do HBOT if currently under treatment and have cancer.
I have multiple bilateral lung nodules, which have so far, responded to Opdivo. Some have shrunk. I've only been on Opdivo for a few months. It's working, I don't want to mess with that.
Does anyone know if my taking Phos Nak a problem that could lead to ONJ?
Also should I have a CTX blood test and a jaw CT? Had a 180 X-ray at DDS.
So far only two Dr's who have consulted are RO and DDS.
Thinking I should see ENT and ask him, he was one who initially warned me against any surgery in H&N area. He's been my touchstone through all of this.
I need to speak to my Onc, I've been doing well so only saw NP last two infusions, I told her, but haven't see him in a month.
My quality of life right now is good, I don't want to do something to change that. I am in no pain. Front teeth look dark are pulling away from gum line. Teeth are stained.
Thank you,
Larry
Last edited by larry6905; 09-19-2016 05:33 AM.