Ive sent you a PM (private message).

Our site is the largest online group for OC. Every single day on our website, there are many thousands of hits from all over the world. Over a month it totals many million times our site has been accessed by people looking for info about OC or also called head and neck cancer. That totals significantly more traffic than all the other groups for OC combined.

Please read the reply by Brian Hill. He is our most knowledgeable person about unusual, rare conditions and also anything/everything to do with oral cancer. Brian is the only non-medical professional to sit on many high profile groups where he learns a great deal more than anyone else on our site.

I would much rather try to connect you with Brian than another patient who is probably in the same boat... trying to get info thats next to impossible to find. I suggest you try sending Brian an email or a PM. Provide all the basic info about your husband and include the things he asked in the above post.

Best wishes!!!