It is interesting that my husband is on almost the same time-line. Wisdom tooth, extracted 7 years post-tx. for BOT cancer. Now being watched due to early stage osteoradionecrosis (ORN). I am also terrified and frustrated with the lack of medical guidlines for this problem. Was your husband on long term antibiotic treatment or only during flare-ups?

The advice we have received is that a sequestrectomy/debridement would probably be attempted prior to jaw reconstruction. Has that been discussed in your case? I see you are in Chicago so you are probably at a major center. Otherwise, I am also always looking for help with this. I am so sorry to hear that others are going through this.

Lottie