 "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | The 1 thing I learnt from our recurrence is Not to borrow sorrow from tomorrow.
Your mind is taking to you to some scary places. Don't let it. A counsellor I saw told me that when my mind went to the dark places to literally shout at myself
"STOP" then think of something happy/good. Funnily enough this worked for me.
At this point you and your Team dont have all the information needed to formulate a treatment plan. Be patient. Once you have the plan in place I know you will relax .
I don't know if you have considered a 2nd opinion or if you are wing treated at a CCC. Please consider both of these. You want to be treated by the best for the best outcome for you
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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