Hi there... there are a few people here who've had total glossectomies. One of them in particular has a great quality of life. She is cancer free, and back at work as a tech - apparently she can eat and taste (there are tastebuds all over your mouth) and be understood enough to talk on the phone as well as in person. Sadly she's not around here as much anymore... I guess she's off living her life which is very much what we're hoping will be your situation as well a few years from now.

That said - I think your outcome depends a lot on the surgeon - and your plastic surgeon. I agree with Christine if you aren't at a CCC definitely seek a second opinion. Not about having the surgery... if you've had rads and chemo and the tumor is still there then surgery is a given and not something that should be NOT considered (this disease can be deadly - ). However, you want to make sure your dr. and reconstructive surgeon are the BEST. This will give you optimum quality of life post treatment.

I know people who've had the same type of surgery as me (hemi glossectomy) and have trouble swallowing and speaking.

I personally have minimal trouble swallowing which is easily dealt with by taking a gulp of liquid (usually only dry BIG things are a problem). And my speech is clear. I have a small lisp when I'm tired or cold. That's it. I am an actor so speech is super important, so I wouldn't fudge this. Your surgeon - is important.

Do your homework. This is a big surgery with major impact - done properly you can lessen the fall out.

hugs and best of luck


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan