Hi, I am new on here and just found out today that I need to have a total glossectomy. I am a single Mom with a young child and I would love to hear from others that have gone through the total glossectomy on how their quality of life (eating, talking) was after losing the tongue. My surgeon is at a nationally top ranked university hospital but I may still get a second opinion. He says that I will not be able to talk in a way that most people can understand after surgery. He also says that I may have to tilt head back just to drink since I will have to use gravity to make liquids to down throat instead of using tongue. I already have a feeding tube due to issues that came up during chemo radiation but I hope I don't need it forever. I have seen that some people were able to learn to talk again after total glossectomy and wonder if this is a rare occurrence?
Cathy, age 45 Tongue cancer, diagnosed April 2015 June-July, 2015: 35 radiation sessions with chemo November, 2015--sub-total glossectomy and neck dissection (pathology came back with margins and no lymph node involvement) February, 2016--recurrence, now determining options
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