 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | Hi Jimbob. I think your doctor is a bit mean dismissing your complaints. Did you have radiotherapy? Usually doctors are very onto swallowing problems that follow on from surgery and radiotherapy. The pain in tongue and floor of mouth could be some sort of sensitivity near the surgery scar/join. Where my tongue is scarred down I have a stinging sensation from toothpaste etc. After a broken tooth scratched it, it hurt for several weeks.
The SLP (SLT?) is the person for swallowing problems.
Quality of life after treatment is part of head and neck doctor's field, though - they do lots of research into it.
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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