I wish there was a one stop shopping for all our needs as few places may do. I would also recommend a Speech and Language Pathologist, SLP, as I'm sitting here after completing a weekly boot camp visit, in addition too, specific exercise based on my swallowing needs, physical examination and modified barium swallow. My ENT prescribed it.

There is also manual lymph drainage, using very light massage, if you call it that, as demonstrated on me by an occupational therapist, to help with lymphatic drainage, which otherwise can result in fibrosis. I went to PT, but was for walking, leg strength and balance, and again for my shoulder, so my neck was never really worked on, just what was prescribed.

Also, acupuncture may help, as advised by MD acupuncturist from MSKCC.

MSKCC has a doctor, Dr. Michael Stubblefield, that deals with rehabilitative cancer care such as Trismus, Fibrosis. He has a few articles, videos that may be of interest.

The problem for me is finding time to see everyone, I addition to all my other doctors.

I hope this helps.