I asked him: What can you do for him?? I heard that chemo just softens up the tumor. People have done radiation more than once. If he wasnt targeted on the left neck then why cant you do the radiation on the left?

this is what our radiation doctor said: so the whole area was treated about 6 weeks of radiation and his tumor grew despite of that and this means his tumor was resitent to the radiation.

I told him i thought the left was from a far and not targeted and he said "it was treated".

We can give 3 or 4 more weeks of radiation but you are talking about a tumor that survived 5-6 weeks of treatment already. whenever we add more radiation there are no more tissues and the neck gets affected, one im most concerned about is crotted artery. Artery can rupture and cause bleeding.

I then asked what about brachytherapy. His response "it is a way of giving radiation just around where we put the needle but in this case it is a diffused area. it is sitting next to the croetted artery." we know this tumor is resistent to radiation. I don't think radiation will help you at this point. I recommend the clinical trials.

i then asked what about "proton radiation" his response "proton radiation is a type of radiation that can deliver radiation to very specific areas and in this case as i mentioned before treating this area is not a big issue, its treating microscopic cells thats the issue. there is definitely microscopic cells."

Me: WHat about intraoperative radiation? Drs response "intraoperative radiation is when you open the tumor up and give a very high dose radiation to just that area that the tumor was sitting on. In his case the problem is the tumor is sitting on the croetted artery." Too much radiation on croetted artery is not good.

At this point there is no one standard care for this situation.


22 YO Brother Dx 6/17/14 w. SCC R Lateral tongue
CT scan clear LN 6/20/14
HPV-, non-smoker
R tongue, right hemiglossectomy Surgery 6/24/14
(Not reoccurrence but went to NCCC instead
R neck dissection, tracheostomy, radial free flap, R tongue dissection surg 8/11/14
PT1N2B.3 positive lymph nodes out of 13
Extranodal extension present
9-15-14 IMRT (35x) & Cisplatin (2x) begun
10-21-14 peg in. 10-31-14 1 round of carboplatin
11-4-14 IMRT rx comp
3-27-15 Recurrent tumor in lymph node, L neck diss.
10-29-15 brother passed away, 23 yrs old