Well, so this is what Cispaltin side effects feel like. I have to tell you it is not at all enjoyable. Even with the 3 anti-nausea meds they gave me it is a challenge to find enough motivation to eat. To compound things I have a lot of pain at the insertion point - enough so that just trying to sit up from lying down is a major undertaking, and one wrong move hurts enough to get Steve The Wonderdog running over to see what's wrong when I yell.

I'm curious from others out there who've had a PEG - what was your experience with level of pain and length of time for that to abate? I haven't been able to get out of my PJ's today. For the time being I'm going to fall back on the Oxycodone instead of continuing with the Tylenol/Advil regimen recommended by my oral surgeon.

Peter, age 62 at Dx
3/27/15 Dx T2N2aM0 Tonsilar P16+ G3 SCC
4/6/15 Full PET clear except for above
4/24/15 TOLM tonsillectomy/clear margins. Neck dissection 20 nodes (1 w/cancer & extracapsular extension)
5/28/15 PEG in
5/27 - 7/10/15 Daily Radiation to 66 units cumulative; Cisplatin weekly X 7
8/24/15 PEG out
9/24/15 Full body PET - N.E.D.
12/22/15 CT and physical exam. Continued clear.
3/11/16 Physical exam. Continued clear.
7/12/16 One year post-treatment! CT clear.
7/7/17 2 years post - still clear