Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Denise, welcome to OCF! You are in the best place for info and support to help you get thru your OC battle.
When I was first diagnosed, I was a single mom with 2 teenagers. There was no help available so I know where you are coming from. You will need helpers. Most people really do want to help but dont quite know what they can do. Others (and these will really surprise you) will run for the hills and avoid you like the plague. Some people cant handle someone they love being sick, maybe its the fear of being forced to face their own mortality that spooks them. Starting right now, anyone who offers their assistance tell them when the time comes you will let them know what they can do. Write down every single person (weather you are close with them or not) with their contact info. Contact the American Cancer Society and get the ball rolling. They can help with $300 to use for transportation to treatments or a pharmacy voucher to help with prescription co-pays.
I know its not easy but try not to get too far ahead of yourself with the "what if's". Worrying wont change anything, it will only cause unneeded extra stress making you feel worse. Read and educate yourself. An informed patient is a strong advocate. We are here for you and you can lean on us.
Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |