Hi everyone. I am 3weeks out from treatment. I stopped pump and formula and began blended formula using one called liquid hope and another called real foods. I supplement with fruit smoothies. This all goes through peg. I have more energy and I am not taking acid or nausea meds as much. My stools are normal and bowels working. I had swallow test yesterday and have no saliva in my mouth. It felt very strange to chew again. Is there anyway I can help increase saliva? I do speech exercises everyday and I am hopeful. I am glad to be untethered from the pump and glad to be slowing getting better. I am concerned on the amount of water I get. I do brush my teeth regularly and try to aide dryness with biotine and coconut oil.
My wife feeds me with syringe and I eat at same time she does. So breakfast, lunch and dinner then bedtime snack. It's been difficult to keep calories up but I am lucky I have only lost 20 lbs. any suggestions on how to get off the peg and getting saliva going again would be appreciated. Ya'll have been a huge help to me and my wife.