Hello Christine thank you for taking time to answer my post. To answer your question about do I have a nutritionalist but she wants me on the Peptamen formula and only 1600 cal a day. My wife was giving me six cans a day but this formula made me vomit and have black smelly stools.

When I explained to my Nutritionalist how the formula made me nauseated and I vomited she wanted me to have a TPN put in I did not. I know she was frustrated because I had tried for different formulas and they all made me vomit and have black burning stools.

I'm sure it is a good formula for some people but I have also ulcerative colitis. The pump made it very hard for me to get about and it just didn't work well for me. I was having burning acid and nausea all the time, thus takng more meds than I do now.

The blended formula called liquid hope has worked well for me. Both the real foods and the liquid hope olare FDA approved and have insurance department who are willing to work with you. I have shared with both of my G.I. doctor, radiation doctor, my internist, home healthcare nurses and my oncologist that I have changed my all formula diet to a blended diet.

I do appreciate being told to be cautious. I assure you I am. It is always impt to check all expiration dates even on formula.

Where I am located there are no dental oncologist. Do you think I should travel to see one?

I do see a swallowing and speech therapist two times a week. They are trying to help me eat. Yesterday I ate one quarter of a teaspoon of pudding four times and 4 sips of apple juice which was thickened with thickener by Nestl�'s. I do the exercises daily.

I was ordered one cup of water extra a day while on formula but I try to take in 4 to 5 cups a day. Thank you for your advice I will now try to up my water intake 64 ounces.

Ps I use the app CalorieKing which allows me to create recipes and keep track of nutritional tallies.


T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016