| Joined: Oct 2012 Posts: 1,275 Likes: 8 Assistant Admin Patient Advocate (1000+ posts) | Assistant Admin Patient Advocate (1000+ posts) Joined: Oct 2012 Posts: 1,275 Likes: 8 | Hi Larry, If you have BOT, it's possible that the radiation has fried the salivary glands. John had 70 gray of radiation and even now, two and a half years out, he still has zero saliva -- the dental oncologist measures that every time he has a call back. It makes pushing the food to the back of the throat very hard and swallowing difficult. Unfortunately, for him this is part of the new normal.
Christine has given you some very good advice. You have to make sure you get enough of the essential nutrients. Can you get a consultation with a nutritionist of dietitian through your hospital?
Gloria She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016. | | |
Entire Thread
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No saliva, chewing difficult, swallow test
| larry6905 | 02-20-2015 02:09 PM |
Re: No saliva, chewing difficult, swallow test
| ChristineB | 02-20-2015 08:27 PM |
Re: No saliva, chewing difficult, swallow test
| larry6905 | 02-24-2015 02:09 PM |
Re: No saliva, chewing difficult, swallow test
| pattie | 06-06-2015 07:58 PM |
Re: No saliva, chewing difficult, swallow test
| gmcraft | 02-20-2015 09:13 PM |
Re: No saliva, chewing difficult, swallow test
| donfoo | 02-21-2015 03:57 PM |
Re: No saliva, chewing difficult, swallow test
| ChristineB | 02-24-2015 10:18 PM |
Re: No saliva, chewing difficult, swallow test
| larry6905 | 02-25-2015 03:59 PM | |
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