Hello Pattilynn, I feel,for you. My Husband Kris has also had a Total Glossectomy as well as a Total Laryngectomy. Surgery was March 2012. I guess he is lucky in that he can swallow and does not use his PEG tube. Do you aspirate if you try to swallow?
I do get the lack of socialisation due to the inability to eat. Although Kris does swallow all his nutrition , it is an all liquid diet. He has to tip his head and just pour it in. Then there is the dribbling from being unable to sweep the mouth clean due to no tongue. So he doesn't have anything but a coffee when we go out. I have to ask for an empty cup too as he needs a cup with only a little bit of liquid in, otherwise he wears it when he tips. So, yes, we understand. But life is still good. It's better than the alternative and yes, we know it takes some time to adjust.
Hang in there.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!