Pattilynn, I know how you feel. I can eat soft foods but not socially because of difficulties I experience. I wasn't told I wouldn't be able to eat properly after treatment so it has filtered through my consciousness gradually and now a year later I feel I have just about accepted it. There are times it hits me harder such as a recent invitation to a barbecue, an important event I will have to attend. I'll have to avoid the food! A barbecue is like my worst case scenario.

Your situation is far worse but I can well imagine how hard it must be. Now that you are online, you should be able to meet up with other people with the same issues.

I wish you well and hope we hear a lot more from you:)


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.