| "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Yes.. there is always hope. Please try even little sips and tastes if possible. Look at new things that are available to you - there are always new advances - there is also a site on the web for tube feeders that teaches you how to eat healthfully with a peg. It may not change that you can or can't eat, but it may give you more control if you can make your own foods and put them in your tube. I know it damages you on a social level, but you can still go out and do other things with friends. Go bowling, dancing, to a play. Something where food isn't the focus. Also everything has a cell life. One of our members had a right side facial paralysis. He assumed that was it. A few years later he started getting movement back as the cells regenerated. I have noticed improvements 4 years out. Try try try. You're throat is a muscle. It's like weight lifting, more practice, the stronger it gets. The trick is to NOT STOP trying. Hugs and welcome
Last edited by Cheryld; 02-18-2015 08:05 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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