 Platinum Member (200+ posts)
Joined: Jul 2005 Posts: 207 | Hi Sheila,
I also had horrible mucositis. As you say, good old 5FU (we all know what FU stands for). I stopped treatment December 6th. I wasn't able to have the tube removed until February 1st. I was able to start eating the last week in January, had my neck cut on Jan 31 and the took the tube out the next day. I know it is hard, but he must just bear with it. I took 9 bottles of boost a day. I also found the Walmart nrand to be good for protien and calories. hang in there, the worst is over with.
Steve
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
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