My husband Tim finished 36 IMRT treatments on August 29 and 3 chemo (2 Cisplatin/5FU and 1 Cisplatin) on Sept 16. He had his tonsils removed as a kid, but the ENT told us they didn't get it all and it has been growing back inward all this time. He developed a severe case of mucositis 2 weeks into treatment on July 20 and was hospitalized for a week and again after the second round of chemo. (Good ol' 5FU.) He was put on a feeding tube on July 20 - and is still using one. He can't swallow at all. I realize it is different for everyone, but can those of you who were on a feeding tube tell me how long you were on it after treatment? He is diabetic and takes 10 cans of Glucerna a day. He swishes with soda/salt mixture and Biotene mouthwash. Any other ideas?
Sheila


Wife to Tim Right Tonsil CA IV dx 6/24/05, IMRT 36 treatments ended 8/29/05, Chemo (cisplatin and 5FU) ended 9/16/05