Hi everyone
Hope everyone is doing well. It's been awhile since I have posted because my husband has been doing really good. All through radiation he was strong, still helping around the house, going to social events and dealing well with the radiation. He has been so strong and I am so proud of him. His radiation finished July 16 and we both went back to work Sept 22.
He was recovering well and enjoying being at work and not at home. About 3 weeks ago he started getting severe headaches. Prior to radiation he was using the dynasplint and had made great strides. He increased his mouth opening cold start from 15 to 25 in just 1 month. During radiation it was too painful to use and the saliva and the trismus was making it hard to use. He started using it again Sept 3. He was religious but we did not see any gains. But yet we were hopeful. Then the pain set in and prevented the use totally.
Now he feels the scar tissue in his cheek hardening. He is feeling similar symptoms as he did during radiation and the headaches are debilitating.
He is still working. We ant to emergency a few weeks ago and they did 2 ct scans and found nothing. But told him he was having migraines. Just wondering if any of you can shed a light on this.

We have a lymphodema clinic here and we have been there many times for physio and hey do nothing other then tell him to do exercise. We have an appointment with them again this Friday where we hope they will do some therapy on his jaw.

Sorry to rant. But a few issues scar tissue back with a vengeance, migraines and trismus getting worse.
Hopefully some of you may be able to help me out.
Wishing everyone well and thanking each of you for the support you provide c
Thanks.


Caregiver to Husband
Hubby Age 43
Was diagonosed with Buccual Muccusa Squomous Cell Carcinoma on Feb 13, 2014
T2 N2(not 100% sure if they are malignant) Stage 2 or 3 Not sure bc of Nodes
Surgery took place on March 17. They removed the tumor with 2 mm margins. Flap from left arm inserted into Cheek. Skin graft from left thigh to put on donor site.
37 nodes removed. 3 at level 1 malignant.