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| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Congrats on your 10 year anniversary!!!
In the St Louis area we have held the OCF Twin Cities walk. The events are great places for survivors and caregivers to get together. Seems like we are long lost relatives when we meet. We all understand where you are coming from and understand just how hard a road you must have traveled.
Check out some of the posts under the After Treatment-Long Term Survivors section. You will see some members who have issues with their blood pressure spiking for no reason. There are many younger survivors but they dont always stop in and post on a regular basis. Hopefully you will be able to connect with someone similar to yourself soon.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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