Deborah,

I am so sorry to hear how difficult things are in your life right now. Welcome to the neighborhood, though. You have found the most incredible spot on the planet to rest your weary soul. Many of us have been exactly where you, your son or your husband is right now in life. The journey is rough but many have traveled ahead of you to help walk with you.

I know this may sound crazy but try very hard to not think about what might happen down the road but rather make each and every moment all you can possibly make it. A wise man once said that every second spent worrying is one that you will never get back. Do not waste even one second on worry. Or at least, I think I am a wise man eek !

I sat in the hospital in a daze many times towards the end of treatment, wondering if it would be easier to just give up. Yet, somehow, some way, thinking about all the love around me and those that meant the most to me kept me fighting. I met a very young gentleman in the waiting room that grabbed me by the shoulders and said no matter what, you fight with all you have for those boys that love you so. He told my wife and me of the seemingly unbearable journey had been on with lymphoma. Yet, I could feel the spirit and the love as he talked.

Take the time right now to make the memories. Each and every day you will find small things now that will stay in your mind forever. Cherish everything in life as it is...because it is life.

I was feed TPN (IV) feedings for several months so I know what your husband is going through. It was no picnic but through the support of many of my friends here, I made it through one day at a time; literally minute by minute at times. We are all here for you, no matter what your need is at the time.

Hang in there, I know it is rough. It may not get better in the near future but it will improve.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023