GK, it's good to see you here! Many have faced what you are and hopefully can help you through this. We are all willing to do whatever it takes to do this.

Just remember, anyone that gives you an expiration date is only really guessing. I have even eaten food beyond that date and am still here to talk about it!

Your mind will race for a while. That's very common. This could be the worst thing you've heard in life. Think about other times you received less than favorable news. What ways were you able to process that and get it behind you? Use the same processes. They worked before.

As OzMojo points out, perhaps find a counselor. There are oncology psychiatrists that spend their lives finding ways to deal with only the emotional aspects of cancer. Don't be afraid or hesitant to use them. Settle the mind first and the journey will make more sense from your eyes.

You might consider setting up your own account here if you have time. That can keep some of the caregiver questions separate from the patient perspectives, although both will chime in.

Hang in there. This is all new and a shock right now.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023