 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Iris, that sounds awful. Listen to Christine, please. I haven't heard of many doctors say something like that. Is it because your husband refused treatment last January?
I was diagnosed 11 years ago today, also Stage IV.
As far as health insurance, I'm not sure of your husband's position or if FMLA rules would apply but insurance can still be kept provided you pay the premiums. I don't know your income or money situation, though.
It sounds like you are a in an extremely difficult situation and need to get quite a few questions answered quickly. Can you talk to a social worker at the place treating your husband? Can you speak with his employer? There are so many questions you need answered.
Is there any way we or I can be of service?
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| 
