So we haven't even begun treatment yet, but I plan, and then plan, and plan some more. I know I don't know exactly what will happen, but am trying to plan for the things/situations that may be controllable. For example, the long drive to and fro. Our vehicle is pretty comfortable, but that's from an arthritic perspective! Wondering if I should acquire a travel pillow and blanket and maybe some sort of waste receptacle in case of 'yarfing'? Should I mount the ipad in the vehicle to watch a movie for him? And when at home, sheesh, my husband is the kind of man that can't stand to be idle. He's always got a project or enjoying the chores of living in the country. He's trying to hurry up and finish the chicken coop extension and finish clearing the pasture and getting out the chain saw to finish clearing downed branches etc. I think he is more worried about not being able to do these things-it's always been like his 'zen'! Going out and working on his old 75 Ford pick up is ALWAYS therapeutic for him after a long hard week at work. Now what? How can I help him stay busy if/when he feels like yak? The most 'still' thing he ever does is working on models. Would that be too piddly when feeling like poo? I am trying so hard to plan things to keep him 'busy', even just mentally, and am coming up blank. He is nervous about being bored and feeling useless. And man, the day I have to call my friend and ask her husband to come chain saw something is gonna break his heart. I guess maybe I shouldn't try to plan, but he really needs to feel certain that being idle and bored won't be the end all he feels it is. See, right now he's only been up long enough to shower and is already in my Mom's room hanging her newest shelves! He's more worried about feeling bored and useless than he is about side effects and treatment. His attitude toward treatment is very positive, it's the rest of this that has him bummed. I know that is subject to change as treatment begins, but it is what he's worried about now. Ok, this was way longer than I thought it would be. Sorry, but thank you!


Husband tongue cancer 7/01/14 (forward/right half of tongue)
43 years old at diagnosis
Partial glossectomy/node removal 7/31/14
PEG tube placed
2 mos high dose radiation
2 treatments cisplatin, 3rd was cxld due to hearing issues
cancer in both lungs, stage 4, 05/18/15
chemo port to be placed on 05/21/15
Full scan on 05/21/15
Chemo, 3-4 types (names etc coming soon) for 7 mos
4th type depends on clinical trial and if placebo or not
He is planning to defy all odds and kick this cancer!