Christine, Upown,

Yeah it's a hoot, but not quite an anny. Glad to read nothing sounds terribly out of line with what you guys expect.

Most days I manage 2500-2800 calories - nit quite enough, but I really can't seem to jam more in. I did gain a pound or two back, though, a couple of weeks ago before the new vomiting started, so that was encouraging.

I spend all day drinking water and Gatorade so I think I'm ok there as well. The vomiting days, though, (about 1 in 3) mean I lose ground at least on food. I really, really need that to stop and I will say it brings me nearly to despair sometimes. This mucus is spectacularly different from any of my experiences and it does sometimes worry me, so it's always good to get some reassurance from this amazing community smile!!

At any rate, I expect I can survive this and plan to, but I really hope I start turning some healing corners soon. I need the mouth sores and the nausea/vomiting to stop, and sooner than later!!

Thanks again, guys!

The Hellion


SCC Base of Tongue
Diagnosed 3/5/2014 T2N2C
PEG Installed 3/19/2014
Chemo/Rad 3/27/2014
1x Cisplatin, 4+ TaxoCarboplat + 33 * 70 gy
Chemo FINISHED 5/5/2014
Rads FINISHED
PEG tube removed 10/08/14
Back to work 4 Aug full time
1/19/15 - diagnosed mets to lungs
7/17/15 began Pembrolizumab clinical trial demitted October 2015
1/14/16 began Tremi-MEDI trial
-This far, no further! On ne passe pas!

**update** passed away 3/26/16 RIP, you will be missed by many