No doubt about, both the peg tube and cisplatin suck. My MO said 10% have hearing issues with cisplatin. Form what I see on this forum, watch out for ringing in your ears. It also leads to constipation. That's about 99.9% of the time. Make sure you talk to the docs about that. It also made me very sick and stupid. I received the large doses on Monday and the full brunt of hit hit Wed night. Driving was difficult for me tues-thurs. On the second dose I was unable to drive that week. Its kind of a mixed bag, some people are fine, others find it extremely disabling, and some have to switch to weekly doses or to carboplatin do to severe reactions.
Staying up on the meds might become difficult. I had a hard time remembering what I took and when. I resorted to a log sheet. I wrote down what I took and when. I even started to write done feedings and quantities.
Peg tube is also a pain. My advice is put a little water thru it several times a day to keep it clean and rotate it 1/4 turn two times a day. Don't use it for feeding until you have to. Eat by mouth as long as you can. Eating by far is the most difficult part of the treatment. I was never hungery. I also found food repulsive. So I ate when the clock told me to eat. I did not get hungry for 5 months after treatment.
Stay with us thru treatment, you will be glad you did.
Hockey Dad 43, No smoke, Small BOT HPV+16 8/30/12 Biopsy found SCC in Lymph node (removed) 9/19 DX 4a T1N2aM0 10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15) PEG tube in 11/7. Out 1/4, Back at work 2/4/13 PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
|