 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Anita,
It's very unfortunate what Clark has going on with the jaw. This doesn't help, I know, but very few end up like him. Some acupuncture has helped some but the only fix when it gets real bad is to cut the tendons or ligaments in the TMJ. The problem with that is the mouth won't shut and I'm not sure if people can even chew after that. Everyone I know faced with that opted out of the surgery.
Maybe someone else knows some more successful remedies but once the muscles cord out and contract like that, the only thing works has to be done before that point.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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