Hi, Anita
this is a shot in the dark, but is there any chance muscle spasms are contributing to the pain? Could you ask the PCP about muscle relaxants - if not contraindicated? This wouldn't be a solution to the problem, but maybe it would help the pain a bit. I have arthritis, and use them when my TMJ flares.
Best wishes to you and Clark.
Maria

CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.