Hi Anita, trismus is miserable! I wish I had a solution to offer. You mentioned that Clark uses his Therabite daily -- I don't know if you meant multiple times daily, but I was told to use mine 7 x a day. I also try to work in exercises recommended by Sloan Kettering here:

http://www.mskcc.org/cancer-care/patient-education/resources/trismus

The same site recommends seeking out a rehabilitation doctor for persistent trismus. Maybe that's an option for you?

I personally have found it helps to yawn a lot.

Clark has my sympathy, good luck, PLEASE let us know if you find the cure!

Lynn

53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides