Theresa, my PEG started hurting two days after surgery. I needed oxy to tolerate the pain it was so awful. It took two more days for the surgery nurse to make it to my room. It turned out the PEG had become too tight. They adjusted it, but it tightened up again a few weeks later -- I think as I became hydrated. Getting it adjusted is simple, painless and easy.

It should not be hurting intensely. Something is wrong with the PEG, not with you! What would you tell one of your children who was going through this, scared, in pain, in shock? Well right now you need to give yourself some mother love, too.

Lynn


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides