Theresa, I know this is hard. More so as you have small children to care for.
Do you have family who can help with the kids?
If you need pain meds to help with the PEG pain, take them. Though it shouldn't hurt for too many days.
You now need to tell yourself that you can do this, and believe me , YOU CAN. Take it one day at a time and keep breathing. You can do this. Think positively. attitude is everything in this fight. Tell yourself that you are going to both get through this and you are going to survive. You have so much to live for. I truly hope Family will help you through this and with the kids. Above all, be kind to yourself.
Thinking of you,
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!