OP Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | Thank you all for the reassurance. The break did help, both physically and emotionally. Now I have finished my fourth week. If I can keep it up, I will get a short break at the end of the month for a special trip. That is the happy thought I am holding on to. At least I have more pain meds now. I cannot get as much food in me as they woukd like, but at least I have gotten that stable, so I will be content. The hair is distressing in its suddenness and persistence, but that is the one side effect I do trust is short term, so I am okay with it. My mouth is my bigger scary concern. But everyone hete is very kind and uplifting and pushy in just the right ways, thank you!
Still hanging on by a hair, Kristen
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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