Thank you all for the reassurance. The break did help, both physically and emotionally. Now I have finished my fourth week. If I can keep it up, I will get a short break at the end of the month for a special trip. That is the happy thought I am holding on to. At least I have more pain meds now. I cannot get as much food in me as they woukd like, but at least I have gotten that stable, so I will be content. The hair is distressing in its suddenness and persistence, but that is the one side effect I do trust is short term, so I am okay with it. My mouth is my bigger scary concern. But everyone hete is very kind and uplifting and pushy in just the right ways, thank you!

Still hanging on by a hair,
Kristen

Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery