I am a caregiver to my husband who had cancer of the soft palate, radiation & chemo two yrs ago, recurrence in the tongue and lyphnodes, three surgeries including left radical neck dissection, 3 sets of chemo, starting with induction and then round two tried Erbitux but he was severely allergic. The latest ct scan revealed cancer in the floor of the mouth and the jaw bone in the front. So surgery is his only option now and he is schedule for a mandilectomy of the front jaw with resconstruction from his leg. I have pretty much been a solid rock through all of these treatments in the past one yr and a half. Now with the impending surgery I'm internally freaking out. I work full time and his parents are elderly and not in great health. I have little support here locally from family. So I am trying to figure out how best to make his recovery successful, how much to plan to be out of work (I have vacation time available) and when to have visitors. Honestly the thought of visitors in our home during recovery feels like additional responsibility vs. help. So my main questions are when should I ask the parents to be here? I have a very dear Aunt whose said she would come up and sit with me during surgery and stay in a hotel room. My uncle passed away from this disease and she understands what I need. If I understood better what to expect, I would be less freaked out.


Caregiver to husband 53 SCC stage 3 soft palate 2011 Rad, recurrence tongue stage 4 2012 induction chemo, partial glossectomy surgery, cancer back left rad neck dissection 2013, more chemo, allergic to erbitux, cancer back 2014 floor of mouth and jaw, mandibulectomy scheduled 3/5/2014