Linda I think you've been given some valuable information. I don't have much to add other than I'm sorry about what you are going through. And Tammy is right his pain Is likely related to nerve involvement. The hospice/homecare should be working to keep his pain under control. This has to be one of the worst cancers in the way it manifests itself and it's impact on day to day life. Hugs and many blessings to you.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan