I can certainly see how this would make your head spin. Unfortunately I am also one of those family members who can provide little help on what hospice can and can't do.

My limited understanding is they limit themselves to minimizing pain and they do it via pain meds. When my father was in hospice for end stage alzheimers a feeding tube was considered to provide some nutrition. It was just as quickly ruled out because in the doctors opinion he would've ripped it out and created an infection problem on top of his malnutrition problem. The only way to prevent it being ripped out would've been to restrain him with straps and that was deemed to be cruelty.

In light of your brothers long term lack of interest in his medical condition would he even stand for a feeding tube?

Good luck Linda, we will all be thinking of you.

Tony