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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so sorry to hear about your brother. being his caregiver must be the most difficult thing you have every gone thru. I cant even begin to imagine how hard this is on you.
As far as the pain goes, it could be the tumor is pressing on nerves causing his pain. You can ask about the feeding tube but I would doubt it would be given. From what I understand of hospice they will not give life supporting tools to patients. Their job is to medicate and keep the patient comfortable. Hospice staff are specially trained and should be able to answer many of your questions, especially about end of life things. We can help with moral support and any questions about OC.
This is going to be a long hard road for you. I admire your strength being able to handle this terrible situation. Your brother is a very fortunate man, I hope he appreciates everything you have done for him.
Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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